Have a quick question?

REGISTRATION FOR 2019 IS OPEN
Aug 30-31st, Sept 1, 2019

Date

Bentonville, Arkansas

Location

UAMS MS Research Team

Benefits

Your Questions Answered:
Who founded the organization?

Scott and Jo Rampy, their daughter Alexandra, and son-in-law Blake founded the foundation in November 2011. They were inspired by the support and encouragement they received from the Bentonville, Arkansas community in their personal fight against multiple sclerosis. Learn more about the Foundation’s impact and the MS research it helps fun.

• Scott Rampy, co-founder
• Jo Rampy, co-founder
• Alexandra Bornkessel, co-founder
• Blake Bornkessel, co-founder

As we grow, we look to expand our board.

First, thank you and that’s awesome! Consider joining our fund-racing team - Team Endurance for MS. We can also feature your fundraiser right here on researchms.org and help you brainstorm ideas for fundraising. Ping our Director of Marketing, Alexandra Bornkessel, at alex@researchms.org.

Every effort will be made to host the race as scheduled. However, for safety reasons, part or all of the race(s) may have to be cancelled. There will be no reschedule or refunds if race is canceled, as most of you know expenses have already been paid.

Dangerous Weather Action Plan:
1. Delay race start
2. If the race cannot be started in its entirety, efforts will be made to modify the event so some form of race can be held (could include cutting swim, bike, or run events or shortening courses).
4. Race will be canceled if not able to delay or modify.

Weather updates will be emailed, posted on website, and social media.

All decisions are at the discretion of the Race Director, Ruth Sawkins and the Rampy MS Research Foundation.

We donate 100% of race registration fees to the MS research team at the University of Arkansas Medical Science (UAMS). We invite you to meet the MS research doctors on race weekend who will be on hand to answer questions, volunteer, and award the top finishers. Learn more about the Foundation’s impact.

Let’s clear something up: Everyone can play a role in the story of ending MS! You encourage us just by raising your hand. Check out our volunteer opportunities [link to volunteer page]. You can also join our volunteer-only Facebook group and say hi. We often post to this group with volunteer needs and opportunities as they arise.

Don’t let that stop you from getting in touch and saying hello. Check out our Team Endurance for MS. It’s a National, fund-racing team where participants can choose any race, in any place, and dedicate their efforts to MS research. From cycling, to running, to multisport events and the off-the-wall challenge, participants choose their commitment level and we encourage them in their pursuits and support them along the way. Contact teamendurance@researchms.org if interested.

As we grow, we look to expand the reach of our events.

We have lower age limits in place for safety. For positions near traffic, such as bike courses or parking volunteers need to be 18+. Positions such as water stations require volunteers to be 16+. If you have younger volunteers, they need an adult to be paired with them. Please contact theresa@researchms.org if you have any questions.

A fantastic attitude! Enthusiasm! Check the weather. The events are outside so come prepared for heat, cold, and anything in between. Folding chairs, sunscreen, hats, and water are all great ideas.

Of course! We have several areas that are great for large groups. We do our best to accommodate groups to the best of our ability.

Contact theresa@researchms.org and we will do our best to place you in an area that will allow you to leave/arrive at a convenient time without interfering with racers.

Yes! Just contact theresa@researchms.org and we will be happy to record your volunteer hours and fill out any necessary paperwork.

Yes. Team Endurance for MS hosts a team yard sale in the late Spring. Items can be donated to this effort. We also host a silent auction during the Trifest for MS, and items can be donated to this effort as well. Contact alex@researchms.org if interested.

Yes. Contact scott@researchms.org for more information.

We partner with the University of Arkansas Medical Sciences (UAMS) because their research is specific to myelin deterioration through the isolation of the proteolipid protein which is found in all MS patients.

Multiple sclerosis (MS) is a progressive and unpredictable disease of the central nervous system that disrupts communication between the brain and other parts of the body. The severity of the disease and its symptoms vary from person to person. While the cause of MS is unknown and although there are treatments that can slow disease progression, there is no known cure at this time.

MS is most commonly diagnosed in young adults with 2.5 million people affected worldwide. Over 400,000 Americans have MS and another 200 are diagnosed every week. 80% of MS patients develop MS between the ages of 16 and 45. Women are more frequently diagnosed with MS by at least 2 to 1. MS is the leading cause of disability in young women and the second leading cause of disability in young men.

The nerve fibers in the central nervous system are protected and made more effective by a fatty substance, myelin, which helps the nerve fibers conduct electrical impulses to and from the brain. MS produces injury in the central nervous system when the immune system mistakenly attacks myelin. Areas of myelin damage are known as plaques, or lesions, and these eventually fill in with scar tissue. The name multiple sclerosis means “many scars.” MS can also cause destruction of the entire nerve.
The damage from lesions disrupts the transmission of nerve impulses from the central nervous system to the rest of the body causing a variety of symptoms. Common symptoms include visual changes, muscle weakness, problems with balance, fatigue, numbness, and emotional and cognitive changes, but there are many others.

MS has periods when the disease is quite active known as exacerbations. During exacerbations symptoms can be more pronounced, but usually subside and sometimes go away after an exacerbation.

MS has a significant emotional and physical impact on the quality of life of those who have it as well as their families. Seventy percent of people living with MS have a level of impairment from the disease that interferes with at least one essential daily task. After 10 years of disease, 70% of people with MS will not be working outside the home. After 15 years, 50% will require at least a cane to walk. Thirty percent will eventually need to use a wheelchair.

Because individuals are diagnosed and become symptomatic during their most productive years, the financial cost for the individual and for society can be staggering. Direct costs are high. The medications used to treat MS cost between $20,000 and $30,000 per year and the cost for treatment of a disease flare-up is estimated at $12,870. MS also has high indirect costs— from lost wages to under or unemployment. The direct and indirect costs of MS are now estimated at $57,500 per patient per year. The total lifetime costs associated with MS for an individual is estimated at $2.2 million.

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